This has been a roller coaster ~ that really is the best way to describe it. I often feel like with three doctors, they have three opinions and they do not always communicate or agree. After not sleeping and worrying and the entire mess inside my head (which is not very pretty right now) I went in today to schedule my induction and... it's not going to happen right now. I am still on bed rest, my blood pressure remains high, but not out of control. Most importantly Michael's heart sounded great and my labs all came back normal. The doctors report from Pensacola last week, never made it to my other doctors office, so I got to tell her my take on the visit and results from last week. I had my sister in law with me and I really think I was clear. I told her one cyst was gone but there was a little more fluid around the other cyst. His kidney dilation did not look worse. His heart is of course a big concern right now, but even that is not "lethal yet", it is enlarged a little bit more and the hole is a little bit bigger. The biggest problem is that his growth has slowed considerably which is to be expected with these chromosomal issues and the excess fluid surrounding him. This doctor also told me that he will likely remain in a breech position because the chromosomal issues also will likely not signal him to get into the correct position for delivery.
I am often asked what our goal is and I can say with more clarity now that I still do not know.
Continuing to think of you and your family.
ReplyDeleteYou are all very brave...
Jen
Thanks Jen
ReplyDeleteHello Jodi its Carly (feb 2010 EC) I hope you don't mind my intrusion but I often read your blog to see how you are, I just had to break my silence and say that my thoughts and prayers are always with you and your family, The strength that you continue to have is amazing as always you remain true to your goal doing whats best for michael. I am not sure I could be as selfless. I wish I could offer you more but please know not a day goes by that michael and you are not in my Prayers. Please take Care.
ReplyDeletewish i could do more, say more and write what i feel but through teary eyes and a heart that sometimes soars with you and sometimes is saddened at the same time i hope you know that you are admired and i am in awe of your strength and resolve. Michael is a boy that will know his mothers love, his dads unyielding resolve to hold things together and his sisters wish for a moment longer. your family is amazing and is a testament to the love that binds you together. i simply cannot imagine anyone questioning your decisions. you are a neighbor but more importantly a friend. thank you for sharing what could only be described as heartbreaking (and heartlifting at the same time) and reminding me of the true meaning of love.
ReplyDelete