Our journey through life ~ trisomy 18 diagnosis, life after loss and rainbow baby/babies, infertility, advanced maternal age and the new normal - dealing with grief.
Friday, April 9, 2010
Michael
Well, this is actually a picture Bill took - I am going to post the new pictures up over the weekend, but I do love this picture, so here is baby Michael, such a little boo...
Awww. What a sweet picture. I always check your blog to see how everyone is doing. I love the sand angel that your daughter did. Even though Michael is not with you in person, he has touched many people's lives.
I came about your blog via iVillage. I was lurking on the TTC over 40 thread and saw some correspondence with your blog link. I hopped over to take a look. I've been reading thru some of your older posts so that I could gain some understanding of your loss. Words can not adequately express how sorry I am for your loss.
I have been posting on the Over 40 and Pregnant thread and also happen to have a blog. I have shared with the women over there (and on my blog) that some quirky blood work came back showing an increased risk for Down Syndrome. My risk assessment has been labeled as 1:17.
When I got the "dreaded phone call" (as I saw you refer in one of your older posts), I do remember telling my doctor that I was just relieved it was Trisomy 18. I think that you and your husband and daughters are incredibly wonderful/strong/faith-filled people to carry that baby to "term" (or as long as you were able).
I have been discourage by some (and by the statistics from the National Down Syndrome website) as to the number of women that terminate a DS pregnancy. As of now, I haven't even had amnio done...we are just accepting what God has in store for us.
My only sadness is that some days this pregnancy is filled with so much anxiety...and is it will be our last, that is disheartening. Though mostly I have good days. I've been reading and posting on the DS/Trisomy 21 thread and the ladies over there have really helped me to see that babies born with DS can lead very full lives.
Anyway, just wanted to say hello and that I'll be keeping you in my thoughts and prayers,
Valerie
P.S. I agree that Destin in one of NA best kept secrets. We are Midwesterneres that vacation regularly (yearly) on the Gulf Coast (Gulf Shores area), but usually do a day trip each vacation to Destin.
Hi Valerie - congratulations on your baby! I know it is scary. I have to go check out your blog. When are you due? I grew up in Omaha Nebraska : ) so I am a fellow midwesterner (sort of)...
Jodi, I just found your blog and your words are so comforting to me. My unborn son was diagnosed with T18 one week ago, at 21 weeks gestation. It is nice to know I'm not alone. We are undecided on termination. I have so many thoughts like you - that I'm the mama and I need to protect my son as long as I can. But on the other hand the next four months ahead of me seem like an eternity. I'm scared and don't think I can do it. If you have any thoughts you would like to share with me, please email at jen.kerschbaum@gmail.com. My prayers to your beautiful family for peace as you mourn the loss of your perfect angel, Michael.
Awww. What a sweet picture. I always check your blog to see how everyone is doing.
ReplyDeleteI love the sand angel that your daughter did. Even though Michael is not with you in person, he has touched many people's lives.
Hi Jodi.
ReplyDeleteI came about your blog via iVillage. I was lurking on the TTC over 40 thread and saw some correspondence with your blog link. I hopped over to take a look. I've been reading thru some of your older posts so that I could gain some understanding of your loss. Words can not adequately express how sorry I am for your loss.
I have been posting on the Over 40 and Pregnant thread and also happen to have a blog. I have shared with the women over there (and on my blog) that some quirky blood work came back showing an increased risk for Down Syndrome. My risk assessment has been labeled as 1:17.
When I got the "dreaded phone call" (as I saw you refer in one of your older posts), I do remember telling my doctor that I was just relieved it was Trisomy 18. I think that you and your husband and daughters are incredibly wonderful/strong/faith-filled people to carry that baby to "term" (or as long as you were able).
I have been discourage by some (and by the statistics from the National Down Syndrome website) as to the number of women that terminate a DS pregnancy. As of now, I haven't even had amnio done...we are just accepting what God has in store for us.
My only sadness is that some days this pregnancy is filled with so much anxiety...and is it will be our last, that is disheartening. Though mostly I have good days. I've been reading and posting on the DS/Trisomy 21 thread and the ladies over there have really helped me to see that babies born with DS can lead very full lives.
Anyway, just wanted to say hello and that I'll be keeping you in my thoughts and prayers,
Valerie
P.S. I agree that Destin in one of NA best kept secrets. We are Midwesterneres that vacation regularly (yearly) on the Gulf Coast (Gulf Shores area), but usually do a day trip each vacation to Destin.
Sorry, meant to say that I was relieved it wasn't Trisomy 18. typo!
ReplyDeleteHi Valerie - congratulations on your baby! I know it is scary. I have to go check out your blog. When are you due? I grew up in Omaha Nebraska : ) so I am a fellow midwesterner (sort of)...
ReplyDeleteJodi
Jodi,
ReplyDeleteI just found your blog and your words are so comforting to me. My unborn son was diagnosed with T18 one week ago, at 21 weeks gestation. It is nice to know I'm not alone. We are undecided on termination. I have so many thoughts like you - that I'm the mama and I need to protect my son as long as I can. But on the other hand the next four months ahead of me seem like an eternity. I'm scared and don't think I can do it. If you have any thoughts you would like to share with me, please email at jen.kerschbaum@gmail.com.
My prayers to your beautiful family for peace as you mourn the loss of your perfect angel, Michael.